A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS



Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".

traciereinikka@hotmail.com

Perth, Western Australia







Tuesday, June 22, 2010

A really great blog for parents

I found this today, after reading through 99% of it (have to take Annalise to kindy otherwise I would read the rest!) it's great. Very technical but still, a real eye opener - pardon the pun!

http://kidsretina.blogspot.com/search?updated-min=2007-01-01T00%3A00%3A00-06%3A00&updated-max=2008-01-01T00%3A00%3A00-06%3A00&max-results=12

Lots of amazing photos too.

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