So today we went to visit the Ocularist to talk about Joel but also to meet two little girl's who have prosthetic eyes due to micropthalmia (the abnormal smallness of one or both eyes) Joel's PHPV is micropthalmic.
The first little girl, Emelia who is 4, poked her head out from behind the door and looked straight at me and I could not even tell she had a prosthetic eye. I was kind of waiting for someone to bring the "real" Emelia out haha. She was a gorgeous little girl and she and Annalise got along really well, playing and laughing. I saw the Ocularist remove the eye, he made it look so easy! Next we met another little girl who I think was being fitted for her first eye. She also had micropthalmia but also had what appeared to be a cataract or very cloudy eye. We met her mum and dad and also Emelia's mum and grandmother. It was so good to be able to talk to people who understand, who don't say "Oh well, it's just an eye" or "at least he can see out of the other one" or the most annoying "it could be worse". The other parents and the Ocularist seemed to understand that these were our KIDS, our babies and whatever happens to the them causes us some pain and is hard for us to deal with. That it is a real issue in our lives. I am so hapy we went.
What they are thinking of doing for Joel is using the contact lens that we already have for him, as we know that it fits, and painting an eye over that so it will look similar to his good eye. We go back on Thursday with the lens to have a proper consultation.
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