A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Friday, January 28, 2011

Appointment to check up on pressure, bleeding etc

We had our appointment today to check up on how his eye is going with the drops. It definitely looks better and Dr Lam had a really good look in there and took the pressure and everything is great. Pressure is normal, ulcer is pretty much gone, bleeding seems to have calmed down a bit and the redness is gone. He's not rubbing it as much as he was before either.

Something I learned today - for all the parents putting drops in their kids eyes, Dr Lam said that even though they may rub their eyes after putting the drops in, the drops are designed to be absorbed fairly quickly so even if it seems like not much is getting in there, it is, and just rest assured they should be doing their job.

We have to go back again in 3 weeks for another check up then after that we are all set to get his shell. Very exciting.

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