A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Monday, July 4, 2011

Getting ready for the EUA

Examination Under Anesthesia

It's tomorrow. Joel will need to fast from 7am until 1pm from solid food but he can have clear fluids until 11am. I think he'll be ok. it's his fourth general anesthetic but at least this time it's not invasive surgery.

Dr Lam will take the pressure of his eye and have a good look at it. The blood that's in there has dried to a yellow colour behind the cornea so his eye probably looks the worst it's ever looked from that perspective, but it's not swollen so it's as wide open as it's ever been which is good.

The Geelens will take an impression of his eye to make the mould for his prosthetic while he's under the general anesthetic. Hopefully we are home by late evening.

Please pray for it all to go well!

1 comment:

  1. Good luck Tracie and Joel. Hope everything went well.

    always in our thoughts and prays.

    Luv the Allens