He was up before 6 crying, I think his eye is bothering him. Yesterday is was so red, the vitreous was bloody and it had swollen shut again. I really tried to keep on top of the drops yesterday too, waking him every hour to put them in. He is so sick of having the drops in his eye, he has developed some really clever ways to get around it. They are so smart.
We are off to the hospital again today, hopefully to get the results back from the blood test.
I've seen photos of another little boy with PHPV who hasn't had surgery. He has been given a painted shell and it looks amazing. It is very hard to tell that his eye is micropthalmic. All this stress of surgeries and that's probably where we will end up anyway. A big part of me is relieved that's where we will end up. The painted eye looks exactly like a normal eye, especially in photos and although we have only had a few months of putting in and taking out the lens, I feel we could make the transition to the conformer if/when it comes to that. Maybe I'm being naive, I don't know. Maybe I'm feeling a bit defeated about it all. I know God has it under control, I just wish I could see even a few years down the track to know what is the right decision to make now. I am going to talk to Dr Lam about it today. At the moment, all we are really doing is trying to save the eye from being removed, I feel like we have all pretty much given up on any hope of him getting any useable vision from that eye, so maybe the conformer/painted shell is the way to go.
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