A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Wednesday, August 4, 2010

Another check up

We are off to PMH again today. Before that I am taking Annalise to the park for a picnic.

Really praying for good news (or at least no bad news). Joel has been super unsettled lately, he has a cold, had his 6 month needles and cut two more teeth all in the space of 3 days. He hardly slept yesterday but he did sleep from 8pm - 4am last night so that's good. He was in sucha good routine before the second operation, we've gone so backwards with everything. He is all over the place. I really hope I can get him back into some sort of routine fairly soon.

His eye looks the same, not much difference there.


  1. Well done on your blog Tracie, it must be so good to be able to share all your news in this way. I will keep praying for your family. Deb x

  2. Weve just had the needles/flu/teeth combo. Hope it passes quickly.

    Great news on Joels progress xxxx