A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS



Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".

traciereinikka@hotmail.com

Perth, Western Australia







Wednesday, August 4, 2010

Another check up

We are off to PMH again today. Before that I am taking Annalise to the park for a picnic.

Really praying for good news (or at least no bad news). Joel has been super unsettled lately, he has a cold, had his 6 month needles and cut two more teeth all in the space of 3 days. He hardly slept yesterday but he did sleep from 8pm - 4am last night so that's good. He was in sucha good routine before the second operation, we've gone so backwards with everything. He is all over the place. I really hope I can get him back into some sort of routine fairly soon.

His eye looks the same, not much difference there.
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4 comments:

  1. DebsAugust 4, 2010 at 11:35 PM

    Well done on your blog Tracie, it must be so good to be able to share all your news in this way. I will keep praying for your family. Deb x

    ReplyDelete
  2. tracieAugust 5, 2010 at 11:54 PM

    Thanks Debbie xx

    ReplyDelete
  3. UnknownAugust 9, 2010 at 7:27 PM

    Weve just had the needles/flu/teeth combo. Hope it passes quickly.

    Great news on Joels progress xxxx

    ReplyDelete
  4. tracieAugust 12, 2010 at 3:34 AM

    Thanks Bron xx

    ReplyDelete

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