A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Thursday, September 16, 2010

Joel is sick

He has an ear infection, cold and the worst part - conjunctivitis. His good eye is all gunky and gross and his bad eye is much smaller and redder than it usually is. It's so unfair. I just feel so bad for the poor little guy, he can't catch a break.

He's slept a fair bit today but has been up most nights. I knew he was sick on Tuesday so I tried to get him into his usual doctor but couldn't, so I ended up paying $60 to see a private GP who gave him a quick check over and said there was nothing wrong. We were up from 11pm- 3am that night so I got him into his regualar doctor yesterday and sure enough, an ear infection. He's got antibiotics for that, then today I saw his gunky eye so back for more drops for his eyes. I really hope it clears up soon, it's horrible watching him not being able to see properly out of his good eye.

I've uploaded some pics of him this morning, before the conjunctivits really set it. He's got a little bruise on his forehead from playing with the "big kids".

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