A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Wednesday, September 1, 2010

Next appointment

I've got antoher appointment with Dr Lam next Thursday, 9th September. I can see the white lines in his eye, to me they are getting more noticeable. Rich can't see them, neither can my mum but I can. I know they're there I just want to know what they are. I also know there's no more operations for him so if it is something bad, we will just have to deal with it as best we can. If it's just a funny little thing going on with his eye then great. My feeling is that it's not something that's just going to go away. It looks like whatever it is, it's there to stay.

I was thinking that maybe it was something to do with where they pulled part of the iris away. It is hard to tell if it's on the cornea or not. Just wait and see. Again.

No comments:

Post a Comment