A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Wednesday, September 8, 2010

Off to our appointment today

We have another appointment at the hospital today, the one I made to check out what the white mass is in his eye. His eye looked amazing yesterday, it looked bigger and the iris was green like his other eye. Usually the iris is dark brown or black. It was as if there was nothing wrong.

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