A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Wednesday, May 12, 2010

And so we prayed...

We asked our whole church to pray, we asked other churches in Perth to pray. We prayed for healing and read every healing scripture we could find. We prayed for wisdom with the decision for or against surgery. We prayed for peace and God's protection over our little boy. We just prayed and prayed and prayed. Rich fasted. Other friends fasted, and we al just kept on praying. I took Joel to Sydney with me for the Colour conference and it was there, 2 days before his booked surgery date, that God gave me confirmation that surgery was the right option. Tears streamed down my face while I held my baby boy, I have never in my life cried like that before. I felt humbled, grateful, in awe, loved and covered. I knew God would protect him, I knew that whatever happened, God would make it right and guide the surgeon's hand. I cried out to Jesus. I sang JESUS JESUS at the top of my lungs and just knew in my heart that Jesus was holding my baby boy. I thank God every day for His healing and protection on my son and I thank God that His son loves my little Joel.

1 comment:

  1. You have faith in God. But i dont think he exists. if He exists, why cant he prevent this from happening?.
    I can just wish Joel get good vision.
    You keep praying. Nothing bad in praying.