A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Monday, May 17, 2010

It's in!

This is what I did:

Instead of wrapping him in a muslin wrap, I used a really big cot sheet with his arms pinned by his side, not across his chest. I sat on my knees with him between then, so my knees were roughly at his armpits, not squeezing him, just more to get to his face at the right angle. Previously I had been leaning across him, like sitting at his side or leaning over the change table. With my left hand, I lifted his lid and held his forehead at the same time and had the lens in my right hand. When I needed him to look down, I said "Ah boo!" and he looked down toward me. I slipped it up into the top lid then pulled the bottom lid down and it slotted into place. Sounds easy hey lol.

Unwrapped him then lots of cuddles.


Now we can get on with our day.

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