By Tracie, wife to Richard and mum to Annalise (May 2007), Imogen (August 2011) and Joel (Jan 2010), who has PHPV or PFVS
A blog about having a child with PHPV or PFVS
A blog about having a child with PHPV or PFVS
Persistent Hyperplastic Primary Vitreous
also known as
Persistent Fetal Vasculature Syndrome
and micropthalmia (small eye)
Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that". traciereinikka@hotmail.com
Joel's problem with his vision has very little to do with his retina, but if they can create a retina from stem cells - what else will they be able to do...
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