By Tracie, wife to Richard and mum to Annalise (May 2007), Imogen (August 2011) and Joel (Jan 2010), who has PHPV or PFVS
A blog about having a child with PHPV or PFVS
A blog about having a child with PHPV or PFVS
Persistent Hyperplastic Primary Vitreous
also known as
Persistent Fetal Vasculature Syndrome
and micropthalmia (small eye)
Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that". traciereinikka@hotmail.com
Perth, Western Australia
Wednesday, June 30, 2010
3 days til the op
And he's still not 100%. The Anethetist is due to ring me this afternoon to see how he's doing. All I'll be able to say is that his cough is worse but his nose isn't runny anymore.
I really hope they don't leave the decision up to me.
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