A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Thursday, June 17, 2010

My Plan

After sleeping on it, I have decided that I still want Joel to wear his lens and be patched for 2 hours a day. This is what I can come up with:

7am - wake up and drops in
8am - sleep
9am - wake
9 to 11am - lens in and patch on
11am - lens out and drops in
11:30am - sleep
2pm - wake
3pm - drops
3:30pm - sleep
5pm - wake
5:30 - 7pm - lens in and patch if the morning doesn't go to plan
7pm - drops
7:30pm - sleep

Fingers crossed.

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