A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS



Persistent Hyperplastic Primary Vitreous


also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".

traciereinikka@hotmail.com

Perth, Western Australia







Thursday, June 17, 2010

My Plan

After sleeping on it, I have decided that I still want Joel to wear his lens and be patched for 2 hours a day. This is what I can come up with:

7am - wake up and drops in
8am - sleep
9am - wake
9 to 11am - lens in and patch on
11am - lens out and drops in
11:30am - sleep
2pm - wake
3pm - drops
3:30pm - sleep
5pm - wake
5:30 - 7pm - lens in and patch if the morning doesn't go to plan
7pm - drops
7:30pm - sleep

Fingers crossed.

No comments:

Post a Comment