A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Thursday, June 3, 2010


So yesterday Joel was patched and grabbed at a teething ring from about 10 cm away.

So happy for him

Here is the video proof!




  1. OH WOW TRACE!!! There's no doubt that he can see that, just no doubt!!! That is so cool! I can imagine you screaming when he did it the first time! And look how happy he is!! Awwwww sooooooo happy for you all!!! xxxxxx