A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Sunday, June 27, 2010

Joel has a cold

I don't know what this means for the surgery. I know the hospital warned us last time that if he had a cold they probably wouldn't put him under a GA. I really hope it clears up by Monday. I've been researching about GA's and respiratory issues and it looks like it is very dangerous for babies so if he is still sick or if the cold is lingering I wouldn't risk it.


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