A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Friday, July 9, 2010

5 days post op

And he's doing better. I think his eye still hurts, he cries out in pain in his sleep and when he first wakes up. I have posted a picture taken last night. It's not easy to see a babies eye ball filled with blood, especially when it's your own baby.

I have finally done some washing and cleaning around the house. The whole week has been a write off. I think I can put it down as the worst week of my life. One good thing is that I have my baby girl at home with me all day today, I have missed her so much.

No comments:

Post a Comment