A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS



Persistent Hyperplastic Primary Vitreous


also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".

traciereinikka@hotmail.com

Perth, Western Australia







Friday, July 9, 2010

5 days post op

And he's doing better. I think his eye still hurts, he cries out in pain in his sleep and when he first wakes up. I have posted a picture taken last night. It's not easy to see a babies eye ball filled with blood, especially when it's your own baby.

I have finally done some washing and cleaning around the house. The whole week has been a write off. I think I can put it down as the worst week of my life. One good thing is that I have my baby girl at home with me all day today, I have missed her so much.

No comments:

Post a Comment