A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Tuesday, July 20, 2010

Post Op check up

Went well. Andrea said she was happy that it hadn't bled again, got to agree on that one. She tried to get a good red reflex but couldn't because he kept moving around, she didn't test the pressure either but that's not really a concern right now. We go back on Thursday at 1:30.

We are on hourly drops of Prednefrin, 4 hourly Clorsig and twice weekly Atrope. The Atrope will dilate the pupil, the theory behind that being that the plaque builds up when the pupil is small, so by keeping it big we can avoid that. It just means that he will be super light sensitive for a while. The drops actually make his eye look more normal. The pupil in his PHPV eye is tiny, with the dilating drops it goes to the same size as his good eye.

The gel they have put in his eye is the gel they use during normal eye surgeries to safeguard the tissue in the eye. I forgot to ask exactly what it was but from my googling, I assume it is something like a viscoelastic solution (just for any parents wanting to get technical!) Normally that gel is removed before they finish the surgery, in Joel's case they have left it in there.

The results weren't back for the blood test they had done for the blood disorder. Hopefully they'll be there when we go in again in Thursday.

Pic to the right of how my little man looks today, poor little bugger. He's only had one lot of Nurofen this morning and seems really happy, albeit exhausted.

1 comment:

  1. Hey Trace, and how are you going? You must be exhausted yourself!! Will keep everything crossed for good news on the blood results. Glad he is a lot happier recovering today. Give him a big kiss and cuddle from me! Mel xx