A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Tuesday, July 27, 2010

Prayer today

Joel and I are going to get some prayer today.

One thing I've been thinking about is that when I am talking to other mums and dads who have kids with PHPV, a lot of them have a strong belief in God and Jesus. I am not saying PHPV seeks out and targets Christian families, is it just that when these things happen to our kids we turn to God? Even if we weren't believers before, would we have turned to Him? When there's nothing left of your own strength, when you can do nothing more and give nothing more of yourself, do parents start to question the existence of someone bigger? Someone who can do something, who can heal our babies? If parents didn't believe before, is an event like having a baby with a birth defect the catalyst to seek Him? These things may be something that was meant to bring pain and suffering and hurt to families, and they certainly do have the capability to do that. There is nothing more painful than seeing your baby in pain. There is no feeling more helpless than not being able to take away your own child's suffering. But is God using these events to bring us closer to Him? To bring people TO Him. There is alot of belief in God when talking about the victories with PHPV but the hurdle for me is to praise Him when we're not having a victory. To thank Him for the amazing little boy He has given me and for the purpose and plan He has for his life when we are at rock bottom with Joel. That's the tough one. That's faith.

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