A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Thursday, July 29, 2010

Another check up and GOOD NEWS at last!

So yesterday we went and had some prayer from two amazing women. They prayed over Joel and annointed him with oil. The prayed for Annalise and for Rich and for me. At one point in the hour or so we prayed, I felt God's peace, tears were streaming down my face and He gave me a scripture which I looked up when I got home. Romans 8:12.

"So then, brethren, we are under obligation, not to the flesh to live according to the flesh -- for if you are living according to the flesh you must die; but if by the Spirit you are putting to death the deeds of the flesh, you will live. For all who are being led by the Spirit of God, these are sons of God. For you have not received a spirit of slavery leading to fear again, but you have received a spirit of adoption as sons by which we cry out, 'Abba! Father!' The Spirit Himself bears witness with our spirit that we are children of God, and if children, heirs also, heirs of God and fellow heirs with Christ, if indeed we suffer with Him that we may indeed be glorified with Him."

I wasn't given a spirit of fear, I am God's child, Joel is his child and we are going through this to bring glory to His name. Amen to that!

So today we had another check up at the hospital and his eye looks great - PLUS - the pressure has dropped. On Monday they gave me some drops to use because his pressure was high. I researched them a bit further because something in me just didn't feel right about them. After reading about them and praying on it, I decided against using them. I know someone is going to think that's irresponsible but I just really felt that he didn't need them right now. So on Monday his pressure was 30, today it was 24. Praise God.

I am now declaring every day that he is healed, that he can see and that he will be a mighty man of God.

The power of prayer is an amazing thing.

1 comment:

  1. I am so happy for you. This is great news ♥♥