A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS



Persistent Hyperplastic Primary Vitreous


also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".

traciereinikka@hotmail.com

Perth, Western Australia







Tuesday, July 27, 2010

This song is my life right now

http://www.youtube.com/watch?v=fncy4_uUS_E

I’m running back to your promises one more time,
Lord that’s all I can hold on to,
I gotta say this has taken me by surprise,
but nothing surprises you.
Before a heartache can ever touch my life,
it has to go through Your hands,
and even though I keep asking why,
I keep asking why.

No matter what,
I’m gonna love You,
no matter what
I’m gonna need You,
I know You can find a way to keep me from the pain
but if not,
I’ll trust you,
no matter what,
no matter what.

When I’m stuck and there’s nothing else by myself,
I’m just sitting in silence,
there’s no way I can make it without Your help,
I won’t even try it.
I know You have Your reasons for everything,
so I will keep believing,
whatever I might be feeling,
God you are my hope,
and you will be my strength,

No matter what,
I’m gonna love You,
no matter what I’m gonna need You,
I know You can find a way to keep me from the pain
but if not,
I’ll trust you,
no matter what,
no matter what.

Anything I don’t have
You can give it to me,
but it’s OK if You don’t,
I’m not here for those things,
the touch of Your love is enough on its own,
no matter what I still love You
and I’m gonna need You

No matter what
I’m gonna love you,
no matter what I’m gonna need you,
I know You can find a way to keep me from the pain
but if not,
I’ll trust You,
no matter what,
no matter what.
I know You can find a way to keep me from the pain,
but if not,
I’ll trust you,
no matter what no matter what no matter no matter what

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