A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Monday, July 5, 2010

Post Op check up

We have just got home from his check up and the news isn't good. His eyeball is bleeding, I knew there was too much blood to be normal. He may have to have more surgery later this week. Where the iris came away is bleeding. I made it all through the appointment and out to the car before I lost it and cried. I should have got someone to watch Annalise today. I have called Rich and he's coming home. I'm a bit upset. A bit? A lot. Really upset. Really really upset. Back to lots of crying then smiling when Annalise comes in. I was trying to make her lunch and every time I put Joel down he cries and she keeps saying "Mummy why is Joel crying?" and all I can tell her is that his eye is sore before I start crying. Poor Annalise, she shouldn't have to experience this, she's only 3.


  1. Oh Tracie, I'm so so sorry. My thoughts and prayers are with you guys. This is a tough road. Much love, Vic xx

  2. Awww hon, is there anything I can do? I'm free as of Saturday.