A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Friday, July 16, 2010

Comparison pics

I've put up 2 pics - one at 8 days post op showing the blood covering the whole eye and another one from 10 days post op. Quite remarkable.


  1. Trace when did you take that second photo? Is that today? that is amazing!!!

  2. 10 days post op was Friday morning, 8 days post was Wednesday night. Praise God hey!!

  3. Wow the difference is amazing Trace! I LOVE the teddy bear pic, gorgeous!
    Thinking of you both tomorrow xox