A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Saturday, July 10, 2010

6 days post op

His eye looks much better. He's happy and smiley and only cries when I put the drops in. Man, he hates those drops. He's been having 2 hourly drops for 2 weeks, then this past week they've been every hour. He's over it.

We went to church this morning and I put in a prayer request to pray for his eye to heal. So now, it's waiting again. Waiting to see what happens at 11am tomorrow.

1 comment:

  1. Thinking of you tomorrow, I'm hoping it all goes well for Joel. I met a lady in Wellington Hospital who had a baby with a cataract who was operated on before William. They found out this week he has scar tissue, they are back on Tuesday to have an operation as well. It just seems so cruel!