A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Thursday, July 29, 2010


Just wanted to say that I do read all the comments people post on the blog and really appreciate the support and encouragement, even though I may not always reply. It's amazing to me that so mnay people are reading it now, lots of people I don't even know and I really hope that it is helping someone through whatever journey they're going throug to know they're not alone.

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