A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS



Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".

traciereinikka@hotmail.com

Perth, Western Australia







Thursday, July 29, 2010

Comments

Just wanted to say that I do read all the comments people post on the blog and really appreciate the support and encouragement, even though I may not always reply. It's amazing to me that so mnay people are reading it now, lots of people I don't even know and I really hope that it is helping someone through whatever journey they're going throug to know they're not alone.
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