A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS

Persistent Hyperplastic Primary Vitreous

also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".


Perth, Western Australia

Friday, July 16, 2010

Zooming in

I bought a new camera the other day, I had to because I left our old one outside in the storm. Ooops. Anyway, the new camera has a really great lens and I can zoom right in so I took a photo of Joel's eye yesterday then zoomed in again when it was uploaded to the laptop. It's pretty amazing, I can see the hyphema in his eye, it looks like a dark mass over the iris but I can see part of the iris so it doesn't cover the whole eye anymore. Maybe when they go in on Monday there'll be a lot less blood to drain than they thought.

New pic of him is up, taken yesterday. Love my boy.

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