A blog about having a child with PHPV or PFVS

A blog about having a child with PHPV or PFVS



Persistent Hyperplastic Primary Vitreous


also known as

Persistent Fetal Vasculature Syndrome

and micropthalmia (small eye)

Our experiences with 3 surgeries, 2 EUA's, patching, contact lenses, scleral shells, prosthetic eyes, emotions, places to get support, links to other sites and general info on vision impairment. I really hope my blog helps and educates and I would love to hear from you with any questions you have, or even if you just need to talk to someone who has "been there, done that".

traciereinikka@hotmail.com

Perth, Western Australia







Monday, July 5, 2010

Post Op check up

We have just got home from his check up and the news isn't good. His eyeball is bleeding, I knew there was too much blood to be normal. He may have to have more surgery later this week. Where the iris came away is bleeding. I made it all through the appointment and out to the car before I lost it and cried. I should have got someone to watch Annalise today. I have called Rich and he's coming home. I'm a bit upset. A bit? A lot. Really upset. Really really upset. Back to lots of crying then smiling when Annalise comes in. I was trying to make her lunch and every time I put Joel down he cries and she keeps saying "Mummy why is Joel crying?" and all I can tell her is that his eye is sore before I start crying. Poor Annalise, she shouldn't have to experience this, she's only 3.

2 comments:

  1. Oh Tracie, I'm so so sorry. My thoughts and prayers are with you guys. This is a tough road. Much love, Vic xx

    ReplyDelete
  2. Awww hon, is there anything I can do? I'm free as of Saturday.

    ReplyDelete